| Time | Text |
|---|---|
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Promising to Fight Rare Diseases
00:01:47
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| So there's 6,000 orphan diseases, you know, that means they have to be under 200,000 patients in the United States, 250,000 in Europe. | |
| And I promised when Rocco was diagnosed, I'll never forget it, and we went to Pesaro, Italy, to see about a match, and we found out that there was no match in the family. | |
| I guess probably the only time in my life I can ever remember being desperate, I promised the Lord that if he would help me save Rocco's life, that I would dedicate the rest of my life to fighting these rare diseases. | |
| Because when he was diagnosed and they told me this word thalassemia, I mean, I couldn't spell it. | |
| I could barely pronounce it. | |
| And then the explanation and the education about all of these rare diseases and all of these families who are stuck with this just egregious, just horrific news. | |
| And I'm more fortunate than others because I had cake. | |
| I had the resources. | |
| And so anyway, so that's what I mean by we will dedicate the rest, my life anyway. | |
| And after I'm gone, which I'm sure it won't be that long, I hope that the company is around, that we can continue to dedicate, you know, the resources, not to making the CEO rich or, you know, the company rich. | |
| Of course, we want to be good to our investors. | |
| We want to make a solid company. | |
| We certainly are capitalists. | |
| But we're capitalists kind of in the old-fashioned way. | |