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Feb. 26, 2008 - Skeptoid
14:39
Skeptoid #89: Despicable Vulture Scumbags

My thoughts on a company that sells useless pseudoscientific hardware to an ALS victim. Learn about your ad choices: dovetail.prx.org/ad-choices

Transcriber: nvidia/parakeet-tdt-0.6b-v2, sat-12l-sm, and large-v3-turbo
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Scamming The Terminally Ill 00:04:03
Very little in life is as distasteful as the practice of scamming the terminally ill.
The terminally ill are often desperate.
They might insist on believing in improbable miracles, and they might spend all of their own or their family's money buying anything that might offer the slightest hope.
And tragically, there are criminal charlatans out there willing to take every last cent.
Despicable Vulture Scumbags is today on Skeptoid.
Hi, I'm Alex Goldman.
You may know me as the host of Reply All, but I'm done with that.
I'm doing something else now.
I've started a new podcast called Hyperfixed.
On every episode of Hyperfixed, listeners write in with their problems and I try to solve them.
Some massive and life-altering, and some so minuscule it'll boggle your mind.
No matter the problem, no matter the size, I'm here for you.
That's Hyperfixed, the new podcast from Radiotopia.
Find it wherever you listen to podcasts or at hyperfixedpod.com.
You're listening to Skeptoid.
I'm Brian Dunning from Skeptoid.com.
Despicable Vulture Scumbags.
Today I'm going to depart from the usual format and answer a single email that I received.
You get a lot of email when you do a show like this.
Most of it praise or thanks for helping a friend.
A bit of it negative, which is usually both obscene and anonymous.
And once in a while, something that really gets my attention.
The following email was of this latter variety.
I am writing you because I am upset, confused, and angry.
Very, very angry.
My good friend was just diagnosed with amyotrophic lateral sclerosis, ALS, and it is heartbreaking.
He has three very young children.
I had lunch with my friend today and listened to him tearfully speak of his fear for his wife and children's future, his rapidly deteriorating motor skills, and the agony he will shortly endure.
He is scared as anybody would be.
His doctors say there is little hope for him.
Unfortunately, he has been given the advice, perhaps by someone who wished him well, to undertake homeopathic therapies, specifically some warped device called the Bar Wet Cell Battery.
To say that I am angered by this obvious attempt to cash in on my friend's fear and horrible condition is a monumental understatement.
The device costs nearly $200 a month and doesn't even include instructions, which are an additional $15.
It's obvious that the $200 would be better spent on his family or even on research to discover a treatment or cure.
This device is a crime against humanity, perhaps not physically, but philosophically.
The people who perpetrate it should be incarcerated.
I have made the very difficult decision to not try to dissuade my friend from using this device, as for now it is the only hope he is clinging to.
Perhaps you have some advice you would be willing to give me and others in similar situations.
Perhaps you can change my mind and suggest what to do.
Well, listener, when I got your email, it really affected me.
I could easily imagine myself in your friend's position and in your position as well.
Sadly, your position is not unique.
There are many such small personal tragedies around the world, and many people asking your same questions.
Amyotrophic lateral sclerosis, or ALS, is better known as Lou Gehrig's disease and may be best known these days as Stephen Hawking's disease.
The sclerosis is a degenerative hardening of nerve cells in the brain and spinal column, resulting in painless weakness and atrophy of muscles, often leading to complete paralysis.
Only one cause is known, a mutation, responsible for only a few percent of cases.
ALS And Clinical Trials 00:09:15
The average life expectancy is only two to five years after diagnosis, though 5% live 20 years.
Stephen Hawking has survived 45 years so far.
Over 5,000 people develop ALS in the United States each year, most of them white males over 40.
In some cases, the progression stops, and a few cases have even reversed.
ALS progresses differently in virtually every patient and is thus exceedingly difficult to diagnose.
There is only one approved treatment, the drug Riliotech, which has been shown to slow the progression of ALS in some cases and prolong life by a few months.
No other treatments so far have been found to have any beneficial effect, though a number of clinical trials for other drugs are ongoing.
The use of a wet-cell battery in New Age healing is the invention of Edgar Casey, an early American celebrity psychic from the early 20th century.
Casey was best known for giving psychic readings on the sick and developed a following of believers in psychic healing, which still persists to this day.
Virginia's Association for Research and Enlightenment, which claims tens of thousands of members, still promotes spiritual and psychic healing through methods developed by Casey.
One of these is the use of a wet-cell battery.
To use it, you mix chemicals in a bucket to create a weak battery.
Next, you mix the special medicines, gold, silver, spirits, or iodine, in a secondary jar.
A wire loops through these medicines, quote-unquote, and you apply the electrodes to your spine.
You're supposed to do this for 30 minutes a day, and Casey said months to years of daily application is required to get results.
The claimed mechanism is to introduce energy and medicinal vibrations directly into the body.
There is no hypothesis behind the device suggesting how or why it might be useful.
Edgar Casey invented the wet-cell battery many decades before ALS was known.
In a world that can feel overwhelming, spreading thoughtful, evidence-based content is one of the best ways to make a positive impact.
Ask your local public radio station to air the Skeptoid Files, a 30-minute radio-friendly version of Skeptoid that pairs two related episodes promoting real science, true history, and critical thinking.
And in these challenging times for public media, we're offering these broadcasts for free to radio stations, available on the PRX Exchange or directly from Skeptoid Media.
It's an easy ask.
Just send a quick message to your station's programming director.
By helping to bring the Skeptoid files to the airwaves, you'll help promote the essential skills we all need to tell fact from fiction.
Just go to your local station's website, find the programming director's email address, or just their general email address.
You can even use the telephone.
I know that might sound crazy.
It's an old legacy device that allows real-time voice communication.
I know that's weird, but hey, it's an option.
The world can feel chaotic, but you're not powerless.
When you promote critical thinking, you can help your community tell fact from fiction.
And that's how we shape a better future.
In uncertain times, spreading good ideas can make you feel helpful, not helpless.
Let's stand up for reason, truth, and understanding together.
Get them to air the Skeptoid files from Skeptoid Media, available on the PRX Exchange, and they'll know what that is.
The battery kit itself is $200 from this company BAR.
But then there's a gigantic list of accessories and chemicals that you'll need a steady stream of, and these appear to account for the ongoing costs mentioned in the email.
The term medicinal vibrations is linguistic nonsense with no scientific or medical counterpart, so it was difficult to search for any research on this.
I was not able to find any clinical trials or any research of any kind on a reputable source such as PubMed into the efficacy of wet-cell batteries for either wellness or treating disease.
The Casey webpage for the battery makes no claims about its powers, although there is a long list of personal testimonials from customers of the Barr wet-cell battery for all kinds of diverse conditions like fatigue, inner harmony, repolarization, and cold hands.
Oddly, the authors of these testimonials managed to realize their positive results in far less than the months to years that Casey said was required, often just days.
Barr does point out that the device is not intended to diagnose, treat, cure, or prevent any disease, and makes no claims about its usefulness.
Apparently they leave that to people like whoever it was who recommended this product to your friend.
Nevertheless, if Barr is knowingly selling this device to someone who believes it may treat ALS, they are indeed despicable vulture scumbags.
I'd like to read you the response of Dr. Stephen Barrett, who runs QuackWatch, to one of his frequently asked questions.
Isn't it better to at least try an unproven alternative therapy than to simply give up, roll over, and die?
Dr. Barrett says, I recommend taking whatever steps are needed to determine the accuracy of the terminally ill prognosis.
If it is correct, I would recommend spending the remaining time in the most productive way.
In my own case, I would place my affairs in order and continue to write about the topics I believe are most important.
I would not waste 10 cents or 10 minutes looking for something that does not exist.
There's one thing that I would add to Dr. Barrett's suggestion, and it's a matter of personal choice.
I'd probably participate in clinical trials, though I'd do it with the understanding that they are rarely successful and with an awareness of potential side effects.
Future ALS sufferers may benefit from my participation.
Clinical trials are always free to the participants, and that's another important distinction between proper medical trials and quack treatments.
The purveyors of quack nonsense, like the wet cell battery, always, always charge money.
The ALS Association website maintains a large list of clinical trials in which your friend might choose to participate.
At best, he may find relief if one of these treatments pans out.
At worst, his participation will further our knowledge of ALS and get us a step closer to the day when it's treatable.
ALS is no picnic, but it's also not the end of the world.
Your friend has three small children who are always going to look up to him as their guiding light.
He has their youth sports leagues to watch, their high school graduations, their first dates, their first broken hearts, their weddings.
He has friends like you watching out for him, hanging out with him, taking him to the movies.
How much of that will he be around to enjoy?
Nobody knows.
But then, you or I might get hit by a bus tomorrow.
In that sense, we all have the same concerns, and we can't all stop living our lives just because we don't know what tomorrow brings.
It is the nature of human beings to come and go.
Passing on is neither unnatural nor unexpected.
It's the way the world works.
Death is not the culprit.
The obscenity here is that someone is getting $200 a month richer off of your friend's tragedy.
Someone who never went to medical school.
Someone who probably couldn't tell you anything about the mechanisms of ALS.
Someone who, I promise you, has never successfully treated ALS and who has no plausible chance of ever doing so.
You've said you're reluctant to dash your friend's hopes, but hope does not come in the form of a worthless piece of pseudoscience.
Hope comes from a realistic chance, no matter how small.
Get him into a clinical trial if he wants to work the problem.
The demonstrably false hope sold by Barr and other Edgar Casey followers is a rip-off and a lie.
Your friend and everyone like him who needs a chance and a break and some hope deserves better.
You ask my advice, so I'll give it, controversial though it may be.
Having ALS doesn't give your friend any special dispensation to cause additional grief to his family and friends.
He still has obligations to them.
He's not above being wrong, and he's not the only person affected by this.
Tell him he's making a bad situation worse for those close to him.
Make sure he has the tools to make an informed decision.
Share your thoughts with his other family and friends.
Be part of the solution and don't enable the problem.
Be Part Of The Solution 00:01:16
You're listening to Skeptoid.
I'm Brian Dunning from Skeptoid.com.
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Until next time, this is Adrian Hill.
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